Saturday, April 12, 2014

Chasing Rainbows and the Gift of Autism




Like Hannah, I asked the Lord for him (1 Samuel 1:1-28). Well, maybe not quite the same way.

I was alone in the long stretch of a hallway that led to our bedrooms. Pictures of my children, all my children, even my little one who lived a short life, spanned the length of the wall from end to end.


And the tears poured down because another month had gone by, and I still wasn't pregnant.


I had but one child now, my Bright Girl, already a preschooler, who was napping in her room.


I thought I was being quiet. I didn't want to disturb her with my sorrow.


But, I was longing for a rainbow baby. Another son after going through the storm of losing my Luke.





Standing under his picture, another wave of grief hit me. As I bowed my head to weep, I banged into the wall.


Ouch.


Bright Girl came out of her room and saw me rubbing my aching head. I'm sure my eyes were puffy, and I was still sniffling.


"What's wrong, Mama?" She peered up at me with her bright blue eyes. "Do you need your daddy?"


Ah, the wisdom of little children.


I nodded my head. "Yes. I need God, my Daddy in heaven." I held her close and prayed, asking if the Lord would indeed give me another son.


After that I stopped asking and stopped worrying about it.


And, the Lord did bless us with another pregnancy. Through an ultrasound, we discovered the baby was a another boy.  


At about five months into the pregnancy, something went wrong.  Billy was driving, and I was

sitting in the passenger seat of our SUV.  I heard a plop behind me where Bright Girl was seated.

“Mommy, please get my sippy cup,” she pleaded.


Reaching around the seat, I attempted to grab it, but, as I picked it up, I felt a searing pain in my abdomen. 


We arrived home a few moments later, and I rushed to the bathroom.

I had begun hemorrhaging and didn’t know what to do. 
I called out to Billy, and he helped me lay down on the bed. 

As I prayed that the Lord would not let me suffer sorrow upon sorrow, Billy dialed my obstetrician.


We went in for an ultrasound that same day and discovered a rupture between the baby’s egg sac and my uterus. On the ultrasound screen, in black-and-white, I could see the stream of blood trickling down from the tear.


“Will my baby die?” I felt my brow scrunch up.


“There’s about a 50% chance of survival," replied the doctor. "But, you’ll need strict bed rest until you heal up.”


That wasn’t complete assurance my baby would be okay, but nevertheless, I followed the doctor’s strict orders—for six weeks. To keep from feeling anxious, I prayed and wrote down my favorite Scriptures on note cards.


Most days, Bright Girl played with her toys next to me, and I lay on the futon in the living room, reading and praying.  Friends came and brought me magazines, books, and movies to help pass the time. 


After six weeks, an ultrasound revealed the rupture completely healed. 


My baby boy, my Little Man, was born a week after his due date with only two hours of labor. As soon as he was born, he opened up his bright blue eyes to take in this strange new world. 


The doctor laid him on my chest, and as I held him, I rested in awe of my Father God, who had given me such a beautiful child. To be able to hold him right when he was born and take him home with me was like a dream come true.
































After his 12 month check-up and immunizations, our little boy came down with a 105 degree fever. We rushed him to a clinic and his fever came down with Tylenol, but after that day, something changed...





I couldn't seem to get a smile, good eye contact. There was an inward turn...




When we would look at him, he would turn his eyes away...




His desire to connect was fading. His growing vocabulary, screeched to a halt...



I felt like I was losing my son.



I kept thinking, this is not happening. But, it was all so subtle. Within a matter of months, he went from a happy, sociable little toddler to one who had constant meltdowns.

He became highly sensory-sensitive and couldn't even stand his own tears on his face and would try to scratch them away when he cried.


I wouldn't give him what he wanted unless he asked for it. He had to ask, either with his words or with baby signs that I taught him before he was one. He would get so frustrated with me. But, I wouldn't give in.


Looking back on that time, I know now that I was fighting for my son. To keep him from losing speech all together. To keep him from disconnecting from us.

Tired of my pediatrician saying he was fine, I took him to a child developmental specialist and a psychchiatrist when he was four.


Both gave him the diagnosis of Sensory Processing Disorder (SPD). And, he was referred to an occupational therapist to receive sensory integration therapy.




He started to turn around...



The therapy helped some, but I had this gnawing feeling that it wasn't the right diagnosis. Even though SPD was hard enough to have, I thought Little Man had the mysterious epidemic that is plaguing so many children of this generation.

Autism.


I pondered this in my heart, hoping that I was wrong. But, the concern grew as he did.





Even though, yes, he did talk, he flapped his arms when he was excited and still had trouble looking people in the eyes for more than a few seconds (I had to be quick with the camera to capture him at attention). 


And, he didn't seem to be "growing out of it." He needed more help.


So, when he was eight, I started asking around and connected with friends who had children with autism who had the same behaviors as my Little Man.


With a list of recommended doctors  in hand, I called until I found one that would see him. A neurologist. Surely a neurologist would finally put to rest my concerns for autism.


Before we went to the appointment, I prayed that the doctor would see it if he truly had autism.


And, she did.


She saw that he did.


So, the puzzle pieces finally came together. And, the picture was still my little boy. But, now I know he's autistic, and he has a long road ahead of him.


This is the son I asked for. My rainbow baby. I was chasing rainbows, hoping that having another son would help heal the ache of having a child who died.


But, it was a different kind of rainbow than I was dreaming of.





He has a disability. I didn't ask for that. But, I didn't ask for a child without disabilities either.


And, of course I still love him. He's mine. He's still my Little Man.


Then I saw it. In asking for another son, I was chasing rainbows, an elusive brilliance that fades away with changes circumstances like the clouds clearing from the sky, revealing the brightness of the sun. 


I didn't know it, but all along, I did have a rainbow. 


The rainbow inside my heart.


Through every sorrow, the love of God, my Father in heaven, has been shining in my heart, giving me the rainbow of a transformed life.


It's true. And, this rainbow is eternal.


In all the pain and suffering of life, when we trust in Christ, he gives us more faith, hope, and love. 


And He will do so even now.


There are always glimmers of grace if you look for them.


Evidences of our Father's presence and providence.


Our last visit to our new pediatrician, I saw a glimmer.


He asked Little Man what he wanted to be when he grew up.


"A Christian scientist." Little Man was serious.


"I believe that God divinely intervened to create us. I don't think we came from monkeys either." The doctor winked and patted him on the back.


Good answer. This pediatrician is a keeper.


And, I would agree. We are all here for a reason. God divinely intervened to create us.


We don't often think about the ways our souls have been damaged by the fall, our own sin, or the sins of others.


We need redemption...


"For the wages of sin is death, but the free gift of God is eternal life in Christ Jesus our Lord." (Romans 6:23)




For I am sure that neither death nor life, nor angels nor rulers, nor things present nor things to come, nor powers, nor height nor depth, nor anything else in all creation, will be able to separate us from the love of God in Christ Jesus our Lord." Romans 8:39)

We need restoration...


And, sometimes, it is through the valley of the shadow of death that the light of Christ shines all the more brightly (Psalm 23).


Through Christ, the Good Shepherd, our dark valleys of uncertainty can become a rainbow valley for our soul.


As we trust in Christ, rely on Him, and look to Him for all our needs, we will become more and more like Him.



"And we know that for those who love God all things work together for good, for those who are called according to his purpose. 


For those whom he foreknew he also predestined to be conformed to the image of his Son, in order that he might be the firstborn among many brothers." (Romans 8:28, 29)



In a way, everything, even hard things like autism, can be a blessing, a gift, if we continue to trust God and offer up our thanks to Him. He knows what He's doing. And, we can keep looking for those glimmers of grace along the way.



Friday, March 14, 2014

Proof of Pi




Ï€
Proof of Pi.


Never changing.
Crucial for circumference,
Or the area of a circle.
Formulated by the Greeks.
Or rather, discovered.
Always existing.
As long as we have round.

Do we really need proof 
For something that just is? 
That's what geometry
 Theorems are for. 
Proofs, proofs, and more proofs. 
It's all logical.

The Logos.
The Word made flesh that dwelt among us. 
But, still we want to touch the nail-marked hands 
And put our fingers in the pierced side. 
We need to see. 
Or do we?

Touched by grace, 
Through the eyes of love, 
We've been given 
These very great 
And precious promises 
From above. 

Look upon the cross. 

Do we still need proof?

It is finished. 




Monday, January 20, 2014

The Mystery and the Majesty




Winters in Florida go from freezing cold one day to warm and sunny the next. As far as the weather goes, I really don't know what a day will bring. But, when when the air is chill, the smell of the fireplaces burning is in the air and the children are sipping cups of hot cocoa with frothy whipped cream on top, I know there is something special, sacred about this time. Our short winter.

The great migration is in full swing and in the ponds and lakes, some unusual water fowl are beginning to appear. 

Earlier this week, Bright Girl went to mail a letter to a pen pal, but stayed outside. The clock ticked away, and I kept looking at the door.  She's usually more prompt and doesn't dawdle. I wondered, what is keeping my Bright Girl?

It was a particularly cold day, and I wished she would hurry back. Before I had to leave my warm abode and get myself and all the children warmly dressed for a little search and rescue mission, she came in, skipping merrily through the front door.

"Come and see what I found, Mom," her smile was shining, her voice loud, bursting with excitement.

"Please just tell me what it is. It's too cold to go out." 

"I found some ducks. I've never seen this kind before." She has the same affection as me for wildlife. I could understand her excitement, but still, it was freezing outside.

"Why don't you go back out and take a picture of them? Then you can show me," —and save this Florida girl from having to go outside in the bone-chilling weather.

When she came back, she was leaping with joy, and lifted up the camera to show me these:

"   









"See? They look like little ducks with mohawks don't they?" My daughter pointed at the viewer on the camera.

"Yes, they do," I chuckled. "I've never seen this species before, but, the male, I believe is the more colorful one. He has yellow eyes." 

She hadn't noticed and smiled in wonder.

>>>Fast forward to Friday. 

Time for me make a visit to the dentist. It was still long-sleeve weather, but had warmed up a bit. The mystery ducks had gone away, probably to another pond somewhere.

I was sorry to see them go.

The Captain called. Right as I was about to leave. The VP of his company scheduled an impromptu meeting, and he couldn't make it to watch the kids.

Oh. Stress.

It's not nice to share it, so I showed Him grace. "I'll be okay. Hope your meeting goes well."

Thinking quick, I grabbed some of Little Bit's favorite baby magazines, filled her sippy cup full to the brim with rice milk and hoped she would behave for Bright Girl in the waiting room.

It was nerve-racking enough to go to the dentist, but to go alone with three wiggly children and a big sister, not old enough to babysit was too much.

My chest was tightening and I was having difficulty breathing. Anxiety was beginning to take its hold...

Then I remembered, this year's Scripture memory from #theJesusProject.

"In the beginning was the Word...(John 1:1)"

The Lord knew all about how hard this would be and He was right here with me.

"The Word was made flesh and dwelt among us (John 1:14)."

He knows what it's like. He did this.

My heart began to settle. To rest. And my mind was free. Free. I could think. And all I wanted to think of was Him. The One who freed me from my fears.

To look into the very eyes of Christ and see Pure Love Himself.

"And we have seen His glory. The glory as of the only Son from the Father, full of grace and truth (John 1:14)."

I breathed deeply and smiled. Everything little thing was gonna be all right.

The kids were all settled into the minivan and we took off with time to spare.

Instead of stressing, I gloried in the beauty of all the trees that lined the expressway. Old cypress trees with wide trunks and tales to tell. The pines with branches reaching up to heaven. Oaks, tall and stately.

More of the Word came to mind.

"Oaks of righteousness. A planting of the Lord for the display of His splendor. (Isaiah 61:3)"

Planting. Planting seeds.

The seeds of the Word. By grace, through the gift of faith, they'll grow. In my heart, in theirs.

I turned off the exit and looked to the right.

What joy at the sight of it.

A pond full of the mystery ducks. Spashing. Dipping. Diving. My heart full to overflow. Stress gone. No room there now.

Because of Him, the Word. Christ. My Redeemer.

He calmed my fears and gave me rest so I could see His glory. And glory in His Word.

The Word that sets me free.

    So if the Son sets you free, you will be free indeed."
                                 (John 8:36)










Monday, January 13, 2014

The Pearl of Suffering



Stress.

Just saying the word conjures up pictures in my mind. Things I'd rather forget. People who have been hurtful to me or let me down. Unresolved conflicts with those I was close to. Messy relationships. Dark times. Grief.

These things have taken a toll on my health.

Years ago, during a time of great stress, a cyst formed at the base of my skull. The size of a pearl. It no longer hurts, but it's still there.

I sigh.

"And we know that in all things God works for the good of those who love him, who have been called according to his purpose. (Romans 8:28)"

"All things." The ancient, holy, living Word, says "all things."

Even the things that are not good. The broken pieces in our lives that don't seem to fit into the picture of a holy and loving God who is Sovereign over all.

"The one who calls you is faithful, and he will do it.(1 Thessalonians 5:23)"

Faithful. He is faithful. It takes faith in His faithfulness to see what we cannot see:

The impossible coming true. Miracles happening. The bad turned into something good. The sad things coming untrue.

A friend once counseled me on how the Lord can turn our suffering into something beautiful, like the way a clam turns an irritant in its body over and over again until it forms into an iridescent pearl.


All the stressors, the irritants in our life that keep happiness at bay, if we focus on Christ and hope in His unfailing love, turning the hurts over and over again in prayer and softening them with our salty tears (1 Peter 5:6,7), something amazing will happen.


Jesus, the Son of God, the Suffering Servant who bought our redemption, He knows our pain. And, He knows how to make it 


Something beautiful. 

In Christ, there can be beauty in the pain. In the suffering. However long.

And, when the hurt is gone, with only a scar that remains. A pearl. A reminder of where you've been. There is something you can do with it.




In the light, a single pearl found.

We can clutch our pearls, keeping them close to our heart.

Or we can open our hand and share them with others. With others who will treat them with delicacy and honor. 

We can bring our hurts to light in community. A community that has let the love of Jesus shine in their hearts.


"The light shines in the darkness, but the darkness has not overcome it." (John 1:5)


For it is in the Light of the love of Christ that we are able to see the beauty that our hurts have become.


The broken pieces of our lives can be strung together as a necklace, a story, to adorn the beloved bride of Christ. His church. The one His heart desires and longs to be near. Now and forevermore.


"Oh give thanks to the Lord, for He is good,
For His lovingkindness is everlasting.
Let the redeemed of the Lord say so,
Whom He has redeemed from the hand of the adversary..." 
(Psalm 107: 1-3)



Friday, December 6, 2013

Because of Love: Montage of a Short Life



"Why keep a baby that you know is going to die?"

My children's former pediatrician posed this question. She didn't wait for my answer. She looked down at the clipboard and flipped through the documents which held my children's medical history.

This was after the pediatrician informed with me that her sister had chosen to abort her child with Potter's Syndrome--the same abnormality that my infant son, Luke, died from in 2003. Desperate people sometimes do desperate things, so I didn't judge her sister.


I broke the awkward silence. "I'm sure your sister is still sad." I would be. I still was.


She paused, looked up at me, furrowed her brow and wrote something down on her clipboard.


"Some of your children are not fully up-to-date on their immunizations," she said, changing the subject.


When I left the doctor's office, my head was spinning. Luke lived. I held him for eight hours and then he fell asleep peacefully in my arms before he stopped breathing all together. Those were precious moments that I would never take back. Not for anything.


Why keep a baby that you know is going to die?

Because...










































Because we loved him.


Missing you, my sweet little Luke.



Until we meet again,


Mommy